Tuesday, December 08, 2009

It could have been our story

I wrote this little message to my friends on Facebook, on June 4, 2007:

I'm posting this to 'vent'. I've got a blog to do this stuff, but right now this seems easier.

We have had a really scary weekend. As our friends know, our 4 yr old twins have autism. There's always something new to worry about with our boys. With Will, one day it might be that he refuses to walk because he needs/wants to line his toes up together and won't take a step, the next day he may decide that he's set rules up around food and he won't take a bite. This weekend he thought it would be fun to run away to our nearby provincial park & the Bow River.

I'll leave out the details, but you don't have to be a parent to know how terrifying this was for us. Jonathan was in the washroom, home alone watching the kids yesterday when Will made a run for it out the front door. By the time Jonathan discovered he wasn't in the house, he had to leave the other two boys on their own so that he could run & search. He made it all the way to the Bow River and fortunately, a group of women stopped him before he could go right in. They contacted the police and Jonathan had some explaining to do when he got there. Will was oblivious to all of the excitement and his only scars were the smattering of mosquito bites he got from being in the bush.

We've got an alarm system that was installed for this very reason. Sometimes Will gets up while we're sleeping and we don't hear him and he wreaks havoc throughout the house. He's got a chime that goes off when his bedroom door opens so that we hear that he's awake and all of the exterior doors have an alarm when they are opened as well. But it's summertime and our windows are all open to keep us cooled in the heat and the birds are louder than the alarm so we are not hearing it.

We woke up this morning to find no Will in his bedroom. No Will anywhere and the front door wide open. This time we think he only had five minutes on us and Jonathan sprinted into the Park while I drove the neighbourhood, looking for him. Lucky for us some cyclists on their way to work on the paths along the River, found him and stopped him.

In only his PJ bottoms, a non-verbal little boy running in bare feet. He's safe and already trying to pry open the lock on the back door to get into the backyard as I sit here writing this. New locks are out on the table, ready to be drilled into the doors and a call to the security company is on today's agenda to figure out how to make our alarms louder.

The worry never ends.


When it was written, Will had yet to come his closest at causing this family a lifetime of heartache. He succeeded in reaching the rushing river and jumped in, lured by his fear and the rush of adrenaline he thrives off of. Again, someone was watching over him (and us) and a man walking by saw him go in and he jumped in after him.

I don't tell this story without emotion or off-handedly. It remains a reality in our life and it rears its terrifying head every now and then when we least expect it and become nonchalant. It is the fear that makes my blood run cold and the nightmare that wakes me, while I'm left with the chills, remembering how I just jumped in a river and came out without my little boy in my arms.

My thoughts have been preoccupied the past two days, as the story hit the news of a missing 7 year old autistic boy who went missing in Nova Scotia, without a winter coat, after wandering off into the woods, following his dog. James Delorey went missing Saturday afternoon and although it was happening on the other side of Canada, I'm sure anyone who has a connection to someone who has autism, was glued to the story as I was.

He could have been Will. He could have been Owen.

He's non-verbal. He doesn't respond to his name. Lost.

His mother must have lived in terror. How can you get through the night knowing your baby is out there in the woods in the dark. In the freezing winter cold.

When we hear of stories like this, it's almost automatic to create a detachment so that you can 'cope'. If you don't learn the details, you don't have to feel bad. If you listen to the facts and turn your brain off to the imaginings of how the players in the story are feeling, then you don't have to feel anything at all other than interest. I try. I try so hard to not care. To not pay attention. To not dwell on the details. To leave the news in the newspaper and walk away unaffected. But that's not who I am. I'm a try their shoes on kinda person. Sometimes I wish it weren't so, but it is.


So when I heard about James, I immediately ached for his family and for him. I imagined the worst, but I hoped for the best. I joined the facebook group created to share information and coordinate the prayers for his safe return.

Today our prayers were answered and James has been found. His dog, Chance, came out of the woods this morning and returned home. Rescuers were able to follow his tracks that led to an unconscious and severely hypothermic James. Barely alive, but alive. He is currently in hospital, in critical condition. 

I watched his pictures flash across the screen and had the vague thought that he had that sweet look that my boys have, that many children with autism seem to have. A look that almost seemed familiar to me. 




Then an image of James flashed of him wearing a graduation cap.


James



It reminded me of Owen's graduation cap that he wore in August when he graduated from his school program:




Take a closer look.

Owen's therapist came to our house tonight for a session, quite shaken up. It seems Owen was James' classmate this year, here in Calgary. Before his family moved back East to Cape Breton, Nova Scotia.

It could have been our story. This one's too close to home.

Please, please, please say a prayer for James and his family. And for all families who live with these truly founded fears. Pray James' story doesn't repeat itself for anyone else and that he comes out of this healthy.

For more on this story: click here.

Saturday, December 05, 2009

Poopy Snow Day


We got hit with a doozy yesterday in Alberta. I kept the twins home for a snow day and now it looks like we won't be going anywhere again today. For my deep south neighbours who say they miss the cold- you can have it! I like the cold and the snow, and I even LOVE a snow day or two, but when you're trapped indoors and a trip to get milk takes a couple of hours, it's not worth it. Forecasts say we have a whole week of this and temps will be around -20 all week with the windchill on top of it. Yuck. We were supposed to go out to cut down our Christmas tree tomorrow, but if this continues, I don't think that will happen.

So what does this mean for us? Well, Owen is quite content. He LOVES his computer and has been watching his video clips for the last hour on Zac Browser. He is currently OBSESSED with this particular video clip. Appropriate because we will finally be potty training over the Christmas break, so hopefully he's preparing himself.

"She's a super-duper pooper, she can potty with the rest. She's the best pooper we know!"



You must watch the whole thing. It's creepy. But it's also addictive. For Owen anyways. He has listened to this same vid at full volume, probably 200 times in the past two days. Now we're all singing it.

Are you a super duper pooper?

This week is going to be a long one.

Wednesday, December 02, 2009

Building a Village

Writing a blog has brought so much to my life, especially this past year. I have met some wonderful people and have been lucky enough to find some fantastic writers, not to mention comedians out there in the bloggy world.

One of my greatest 'finds' is a wonderful blogger known as Unknown Mami. She is at times hilarious, warm, very generous with her support of other bloggers and she offers such a unique voice to Mommy bloggers. She also hosts a cool meme where she invites bloggers to post photographs of their locations, so we can get a virtual holiday via Sundays In My City.

Unknown Mami honoured me with an invitation to participate in her new initiative. With Nancy from If Evolution Really Works, they saw a need for creating a community of bloggers that showcases writers and their blogs that is content driven.




Life 2 Us is a website where you can submit posts, find new blogs, new readers, speak your mind, and interact. I was invited to submit a piece on Fear and I joined in this new community of bloggers. I am really looking forward to being a part of this growing village. Please stop by!



Tuesday, December 01, 2009

Things you shouldn't do when you have a MIGRAINE

things you shouldn't do when you have a migraine..

- wake up
- press the snooze button 45 times after the alarm goes off
- holler to your kids to "come and get your shoes on" because your own voice causes excruciating pain (insert quick rude husband come-back here: "now you know how I feel")
- drive a vehicle
- drive a vehicle without having had a coffee first
- sing Hakuna Matata with your kids in the car. Besides your own voice causing you pain, you are now stuck with the song replaying over and over in your mind for the rest of the day
- bend over to pick up the kids' backpacks because the feeling of pressure that presses against the front of your face, might just be your brains about to burst out from your nose
- walk up four flights of stairs in the school. Each step is like a sledgehammer driving a giant nail through the center of your brain
- drive a vehicle on roads slick with shimmering ice, surrounded by blinding white snow, with the sun full in your eyes
YOU SHOULD: pee before you lie down because you'll never want to get up again
- stare at a computer screen, try to be creative and attempt to blog

I'm going to take my own advice finally and get some sleep. Here's hoping for no migraines tomorrow so I can get back to the blogging world!


Blog Widget by LinkWithin
Grab My Button
LINK TITLE

PremioDardos

PremioDardos
Nominated by: The Chronicle's of Char

Blog Archive


Follow Me and I Will Follow You!

Subscribe
Autism Bloggers
Powered By Ringsurf